My Life is Bigger than This

Time to put it in print. My thoughts on the world around and within me.

Where do I start?! 9:44 PM

I neve thought I would see the day when a phone call from a suergon after an MRI, would take back seat to anything else....

anyone who has ever had cancer, will tell you that the 7-10 days after an MRI or CT or screening of any type, seem like the longest days of your life. Typically, I mske it to about day 5, then I start calling all my different drs to see if annyone has gotten word back early....This time, the days came and went, and only as as passing thought last night, I mentioned my MRI scan to someone and then it dawned on me to ask Chris... "Have we heard anything back about the scans?"


Not only was this a rare occasion, but rarer still was the calmness in his answer "Oh, yeah.. Dr.Haw called and would like you to set up a non urgent appointment" Well this is good in one way, it means nothing has changed for the critical, but something has changed, and I have to wait to find out.....No the weirdest of all is the fact that I am totally ok with that.

I am typing this blog on a flimsy webenabled keyboard, attatched to a TV/Monitor/Phone, laying in bed next to a man with ebola virus who is, at best, "Confused"...Now I know that could be the beginnning of a very interesting story, but alas, no... I am a patient in the wonderful new, state of the art, Abbotsford Regional Hospital. The olus? I have internet! The Negative? This could be a long list......

Let's start with the most devastating... I cannot access Facebook... It is banned from the terminals in here...
next is the fact that while it is a beautiful hospital, they are worse than short staffed at the best of times... This morning it took 4 hours of piece by piece installations, to get a shower.. first came a towel... 30 minutes later, a cloth.. and so on and so fourth.
I am glad I have had ABSOLUTELY no appetite because so far, the only thing I hsve even attempted to eat was some flavourless mashed potatoes, my daily cream of wheat, and a soup that looked like pork and bean (actually very tasty) one afternoon... Other than that, and acouple of bad of ketchup potatoe chips and LOT of Juice, I haven't eater.. That's a lie, I could't say no to the first turtles of the season....

Over the past few weeks my left flank has been flaring up again... I have on many occassions wondered if this would be the spasm to bring me down again as it all felt too familiar to my last downtime.
On an entirely different front, ever since the car accident, I have had troubles peeing.. I will go to the washroom, feeling like I have to go badly, but then sit there and cannot go... I get up and try again, sometimes it will take me 2 or so hours, all the while my bladder feeling like it will burst.

Monday morning, I woke up and my side was in searing pain. I hobbled through getting ready and into the car to take the kids to school, before we left, I said I had to go to the hospital. Normally you have to fight me tooth and nail to go, but this time was very distinct, I had to go.. Now..

We had a short wait in the waiting room, maybe 2 hours. I was moved to a bed in emerg. I told the dr that my side was extremeely sore and I also told him about the urination issues. I was given pain meds and eventually moved over to the medical decison bay. While there, I tried to urinate, and couldn't go, I tried over and over again with no success and eventually had to tell the nurse because I felt like I would explode. She did a Bladder screen and my bladder was over 100% full... I was distended into my kidney. She cathedered me. Everything was good, then my gp called in and cut my meds off! I was in excruciating pain tears all night. Early in the morning the emerg dr put me back on and on something stronger.. To make a long story short, this happened back and fourth, my dr kept cutting them off... I spent two days in the emerg medical decision ward, and onlu on the 3rd day did I see my dr. who again, cut my meds down to virtually nothing then, he point at my IV bad and my antibiotics (They found white blood cells and bacteria in my urine) and tells the burse to pack everything up and send me home with scripts. So now I am really upset and freak out on him.. I told him I was sick odf him being uninformed on uncompassionate, and told him I didnt even know *IF* I could pee yet. He tells me that the reason he pulls all my meds is that it is what's causing myurine black, which is BS because I said I had that problem before I even came to the hospital! Of course he doesn't listen to me, and leaves. Well then I get transfered to a ward basically the emerge dr has diagnosed me with pilonephritis (ki dney infection)My dr says its not, but then again, my dr told me that the bruise across my belt line after the car accident couldnt be bruising from the seat belt and the urologist said it deffinately was... Like I am going to trust anyhing my dr. says... I should have fired him long before now, but now that hee has started with this, I am not allowed to fire him... How STUPID is that?!

Soo again, to try and shorten it up... The catheder has come out twice now to see if I can pee, and I cant... Yesterday I was able to go on my own, but only went half and this time I could not go at all... So I have what's called Urine Retention.... We have no idea yt what has caused it... and from whast I have heard so far, there is a possibility I may not regain bladder function... PLEASE, if you have any spare positive thoughts, send them my way......

The pain in my side is likely just a coincidence or could be a result of the urine building up and distending my bladder.

Then just to make things extra fun, I had an alllergic reaction to my 2nd cathedar and my body id covered in this fun rash!! And I am itching like hell because apparently the pharmacy takes a long time to find their benadryl.

I have a good eeling I wiill be in here until Monday at least... I am tryng my best to get him to let me out to goo see my urologist, who KNOWS what he's doing.... Other than that, I don,t know much. I also on't know much on my MRI results until I can get out and make an appointment.

I miss being home, I miss my family, My body is sore from laying around, Im tired from not sleeping and I just want to go home :o(

THIS SUCKS!

2 comments:

Anonymous said...

Julie my sweet friend, I will be sending out all the good vibes i can so you feel better & quick ! Hang in there baby, lets hope you pee & get back home to your family el pronto!
Love & hugzzz Neo

Anonymous said...

oh Julie I read all your blogs and I just wanna say hang int here and there are lots of people who love you lots!